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Never disregard professional medical advice or delay in seeking it because of something you have read on this website. Pain feels different almost every time. This is an episode of pain caused when sickle-shaped red blood cells block the body’s blood vessels and prevent oxygen from flowing. Note: Sickle Cell Anemia News is strictly a news and information website about the disease. One can read the biological explanations of such a crisis, but can’t really understand what it feels like without having the disease. If other only know. Some noted that it feels like “multiple fractures” and “broken bones and glass flowing through my body.”. The pain can last for a few hours, a few days, or sometimes longer. If this happens in muscle or bone, the result is pain. But the mechanisms of a particular condition aren’t the only thing that matters to these scientists. I can explain what can be done to lower the chances of a crisis and to help relieve the pain, but describing that pain is a challenge. As for the pain that I experience, all I can say is that it is debilitating and I would not wish it upon anyone. What is it like living with sickle cell anemia? So I can’t make those comparisons with total confidence. However, I add that people imagine that finger pain and compound it multiple times over and also to remember that their pain symptoms diminishes quite quickly as they are in control. So, it is only natural for people to wonder about it. The pain … We go through so much, and the world is none the wiser. Our strength is unmatched! HealthTap uses cookies to enhance your site experience and for analytics and advertising purposes. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Pain crises are more likely when someone is sick, dehydrated, cold, or stressed. It can come on suddenly, and be mild or severe. By 33 you would have already known if you have ss disease. Transcranial Doppler Ultrasound Screening, Pain Management Guidelines for Sickle Cell Disease, Her Sickled Journey – a Column by Tito Oye. We guys are a different breed. They have told me that the pain can be "sharp, boring, throbbing, stabbing, and most importantly disabling. To learn more, please visit our. In the lung it's pain a ... Read More I’m constantly asked what a crisis feels like, but I never know how to respond. Patient with sickle cell anemia have anemia and pain crisis , and get more infection. I have never experienced the pain of being stabbed or electrocuted, and I have never broken a bone in my life (touch wood). It is invisible pain. The pain can keep your child from being active, from sleeping well, from enjoying family and friends, and even from eating. Click here to subscribe to the Sickle Cell Anemia News newsletter! The annoying thing is that even many Doctors at times think we are just big babies crying and they disregard the severity, this is where I’m lucky with my haematologist team – they know and they work with quickly to alleviate and control.

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